19
Jul
Victoria, B.C. (Richa Walia): Four members of British Columbia's Expensive Drugs for Rare Diseases Committee have resigned following the provincial government's decision to override their recommendation and reinstate funding for a life-extending drug for a 10-year-old girl suffering from a rare illness. Health Minister Josie Osborne publicly apologized on Friday to the family of Charleigh Pollock, the only known person in B.C. with Batten disease — a fatal neurodegenerative disorder that causes seizures, blindness, and progressive loss of motor skills. The treatment, Brineura, costs approximately $1 million annually. The government’s reversal of a controversial decision to stop funding Brineura came…
